Nate and I BOTH have mixed feelings about this phase of Sarah's treatment. On one hand we are excited that this is her LAST of the intense treatments, (going to the hospital multiple times a week and sometimes everyday) and on the other hand we are being pushed to our limits; physically and emotionally. This past week has been super taxing as Gus is breaking in two year old molars and caught croup. He has been SUPER CRANKY :( Which means I don't get things like unpacking done.
Just as I was beginning to see a silver lining, it was time for Sarah's appointment on Thursday. She got the ok to proceed into this phase, and got her back poke with chemo. as well as chemo. given through her port. This also means she is on steroids this week (meaning major mood swings/meltdowns) until next Wednesday. It is going to be a draining week for sure, as today was the first full-day she has been on them and we had lots of whining and crying. Come to our house if you would like to hear a harmony of crying and whining starring Sarah and Gus.
With this second delayed intensification, comes her cranial radiation treatments too. We meet with the radiation specialist on the 9th of July and she is set to start treatments on the 30th of July if her counts are high enough to proceed. This has been causing me some major anxiety, I will feel better after meeting with the radiation specialist and he can explain things more to us. The cranial radiation has the capacity to delay brain development in someone so young, so earlier this week we had an appointment to get a baseline on her neurophysch. functions. Her results will take a couple weeks to get back.
We are EVER grateful to those who bring us yummy meals and babysit the other kids so we can take Sarah here and there. We are very humbled by the help we continue to receive, THANK YOU!!
Jessica
No comments:
Post a Comment