Sunday Feb 19 update

Sarah's appointment on Friday showed that she was ready to move to the next round of treatment.  So she got a back poke as well as Vincristine, and Doxorubician.  The Doxorubician is the drug that makes her hair fallout.  If you remember back to her first month, this round is almost the same as that one.  She doesn't get as many back pokes, however.  Sarah is a little upset that she will lose her hair again, especially because it is just starting to come back.  At least we know that her hair will come back in.

One of the other drugs that they started her on is the dexamethasone.  That is the steroid that causes the mood shifts and causes her to want to eat constantly.  We have seen all of the above the 3 days that she has been on it.  We are glad that we only have a week on it at a time rather than a two week stretch.  She eats every hour or two.  We had to pack snacks that we feed her during primary to keep her happy.  She will get ornery and very adamant about what ever she wants.  It is tough but we have to remember that it is the drug causing her issues right now.

Saturday was a quiet day at home.  We almost feel like we are getting back into a routine.  I am sure it isn't long before it gets disrupted.  Sunday was a good day.  We all went to church.  I had to spend most of Sunday school and half of priesthood time sitting with her in primary.  She was hungry and didn't want to sit still.  We made it through church without a major breakdown.

Two funny things to add.  First, during Sarah's appointment on Friday, she was in her procedure room to get her back poke.  She tells the nurses and doctors "One day I will wake up and be a doctor."  If only it were that easy.  The second thing comes from Lilly.  During Sacrament meeting, after the first speaker, she jumps and says "Dad, I want to go up there."  I had to explain to her that it wasn't fast and testimony meeting today.  She loves to share her testimony with others.

Thank you for all the love and support we receive.  I was looking back over the last few months today and realized that we have been really blessed.  We feel the thoughts and prayers that are expressed on our behalf and pray for the Lord to bless each of you.