Jan 9 update

Sarah's numbers weren't quite low enough to go home.  Her creatine level is looking good at 0.4, but her methotrexate level was 0.4 as well.  They lowered the frequency of the Leucovorin doses that she has been given.  It is just up to her body to flush out the remaining methotrexate.  Hopefully it will be low enough tomorrow, but we don't know.

The doctor did mention today, that they don't know why some kids have a bad round of methotrexate like this, when they did fine before.  I figure that with our travels and her sickness, her body wasn't in top condition and was worn out.

They moved us to a different room this morning.  Around 8:30 this morning the let us know that they were going to move us over to the overflow in the giraffe wing.  It is where were the last time when they moved us.  The biggest headache for me was that they wanted us moved asap, since they needed the bed by 10am.  The plus to moving is that we have a bigger room.

Sarah did have a couple of issues today.  She threw up early afternoon.  It was mostly mucus and some milk that she had drunk a little bit before that.  It was right before her scheduled dose of Zofran as well.  So she got her Zofran as well as some reglan and benadryl for the nausea.  This made her take a nap.  Toward the end of her nap, her blood pressure had creeped up and they had to give her some medicine to bring it back down normal.

Taking a nap.  The dark spot on her face is a sticker.

Sarah is getting a little bit of cabin fever.  She still has a little bit of a cough, so she is still in isolation and quarantined to her room.  She wants to be up and get out, so it is tough keeping her entertained at times.

Thanks for all the support and love.