Sunday, January 29, 2012

Jan 28th Update

I am writing this from home.  My mother flew into town today and is spending the night with Sarah in the hospital.  It is good to have her help.  Sarah was very excited to see her.  She kept asking Grandma for the surprises but Grandma was good about sticking to not opening all of them at once.  

Today started off with Sarah in a foul mood.  She was up early and you could tell that she didn't feel well.  She had a bunch of little spills during breakfast and wanted a bath.  We gave her a bath and had to give her some nausea medicine.  She gets Zofran every 8 hours, but some times needs a little extra.  She has a couple of choices.  One makes here a little unstable, and the other is given with benedryl.  We have opted to give her the one with benedryl.  It just means that she will usually take a nap right after giving it to her. That was the case this time.  When she woke up from her nap she was a much happier girl. 

We spent a hour or so riding bikes today.  They have a bunch of bikes and trikes for the kis to ride.  She tried out a number of bikes, trying to find a one she liked.  She never found the perfect one but had fun being out of her room.  

Sarah did a pretty good job eating this time.  This is the first time with the methotrexate that she has eaten anything the first day after.  She even asked for a root beer float after dinner.  

We did have one scare today around 11am.  We were coming back from the bathroom and I looked down to pick up Sarah and put her on the bed.  I saw her chemo line laying on the floor detached.  Oh great, I thought.  I called the nurses and stopped the lines with the clips on the tubes.  It took a bit for the nurses to get there, and only a quarter size puddle had formed.  The couldn't use the tube again since it was contaminated.  The called the doctors and since she had less than an hour left of the chemo, they just stopped it.  They doctors said that they usually have around a 5% tolerance on the medication anyways.  So at least she finished her chemo early then.

Her creatine was 0.2 this morning, which is normal.  Hopefully it stays there.  We are grateful for all your prayers and support.  We hope this stay doesn't last too long.

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