It has been a crazy week. I have put in some longer hours at work this week and some of the house has been a little sick. Just one of those weeks. Sarah's appointments went well. Because of her numbers, they had her come get labs in the clinic on Saturday. Her numbers were high enough, but they want them to check them on Monday as her platelets might need to have a transfusion then.
It looks like she will have a week off were they just take labs and then we will start the next round the following week. The next round involves hospital stays since they will give her a high dose of Methotrexate over 23 hours, and then make sure it gets out of her system. She will then have 2 weeks to get her numbers back up before they do it again. This happens four times as part of this next round.
I took Lilly on Saturday to my office. I had to get some extra work done and wanted to give Jess some down time without Lilly. She loves to come to the office and play. I have nerf guns that she loves to shoot, as well as write on the whiteboards.
Saturday night kept the trend for the week. Sarah had a low fever on and off for most of Saturday. It would bounce between 99 and 100. We were keeping an eye on her. She had some pain medication in the evening. At bed time, she was super hyper. We got her calmed down and thought we were done with another day. Gus had fallen asleep yet and started coughing. Jess checked on him and he had spit up. After cleaning him up, we put him back to bed, when we hear Sarah start whining. She needed to go to the bathroom. As part of that we checked her temperature. It was 101.3. Above the magic number. Jess placed a call to the Oncology fellow on-call and we packed a bag quick and I took Sarah to the ER. Her temperature had gone down a bit, but was still close enough that they still admitted her. So we will be in the hospital 2-3 days as we make sure her blood culture's are clean and she gets some anti-biotics in her. It also puts me at the third Sunday in a row where I am at the hospital.
Thanks for all the love and support. We feel it and are thankful for all the blessings we receive.
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