Surprise: You Get a Week Off

Sarah's appointment today was a little surprising.  She has done well this week and has been happy.  The only issues have been some pain in her legs.  We had planned out the week, and while it would have been tough, we had some plans in place.  The clinic was slow today, though.  Sarah's labs were supposed to be at 9am and they didn't get done until almost 10.  We waited for the doctor after we were in a exam room.  She came and talked to us and the lab results for the blood draw wasn't ready yet, so we waited for a little while longer.  When the doctor came back with the lab results, she told us that we are waiting a week, because her ANC was 48.  We were confused since it was 650 last week.  The doctor says that it is common since she had two weeks of her cytarabine and sometimes kids have two drops, one from the first week and one from the second week.  That means that we get a week off so that her ANC can get back up above 750.  At least that means that we don't have to worry about the crazy schedules this week.

We did get some good news though.  Due to our "being angry" at Sarah having to get shots for the PEG instead of through her port, the clinic has moved over to doing the PEG through the port for everyone.  I don't know where they get that we were angry, just a little frustrated since we got it through the port in Utah.  I guess Dr. Thompson (Sarah's Attending) had been trying to get the clinic switched over for a while and we were the straw broke the camels back.  It means Sarah won't have to get the dual shots again.  

Sarah got a spiderman sticker that she brought home from the clinic for Gus.  Right after dinner, she gave it to him and said "I hope you like it.  You will be the coolest boy in town."  She says some funny stuff sometimes.