Yesterday, Sarah and I spent fours hours in the Clinic getting a blood transfusion. She did good, but was ready to go when we were done. Sarah has done great for her last couple of appointments. She has been excited and happy. She gets beads for everything that happens, like transfusions, post access, chemo, etc. She keeps them in a pretty bag. It is a program called Beads of Courage. We need to catch up with all the beads that she should have gotten in UT. We didn't get beads there because Sarah didn't want anything to do with anything that first month.
Sarah has gotten worse over the last couple days in taking her medicine. It doesn't matter what it is, she says it is yuck and it takes us a long time to get her to take it. We are lucky she doesn't have to take anything for treatment right now. In fact, the zophran that she has been on for nausea, she won't have to take for a week and a half or so. She only gets vincristine next week and that doesn't cause nausea. So that means she won't need to take anything oral medications for the next little while.
I have had a couple of emails with my mother that made me think of something that I thought I should mention. Because of Sarah's schedule the way it is, we don't tend to do a lot of forward planning. We don't know really what is going to happen much more than a week out. We schedule her doctor appointments for the following week at her appointment for the current week. It also means that we can't commit to somethings very far in advanced. I am sure things will get better as we get further down her treatment.
We are grateful for all the love and support.
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