Wednesday, September 28, 2011

Princess Party and More Clinic Visits

Sarah and Jess have been to the clinic everyday this week.  Sarah's hematocrit is approaching the level where she will get a transfusion.  During her clinic visit today, the doctor went ahead and just ordered the blood for tomorrow.   Her appointment is in the afternoon, and I will go and sit with her while she gets a transfusion.  

Sarah's appointment today was supposed to be short, or at least I thought so.  We got there around 9:30 and got labs done.  The clinic was a little late in seeing us for the appointment with the doctor, but that was fine.  We got a surprise, when Sarah was ready for the chemo meds.  She was schedule for the PEG and the Vincristine.  In UT, Sarah got the PEG in the hospital and it was a push through the port.  In Seattle, the PEG is two shots in the legs.  So we had to put numbing cream on Sarah's legs and then wait for it to numb them up.  Sarah didn't like the shots but she did pretty well.  Yes, there was screaming and Mom and Dad had to hold her still but she was done with the crying fairly quick after the shots.  They need to watch her for an hour after the shots due to the possibility of an allergic reaction.  We ended up getting out of the clinic around 2pm.  We treated ourselves to Top Pot Doughnuts on the way home.  And of course, Sarah got a pink one.
Melody, Sarah and Lilly in Princess dresses
Lilly had an early out day today.  DeeDee was watching Gus and went to get Lilly from school as well, and when Sarah got home from her appointment, she had a princess party.  Melody (DeeDee's daughter), Lilly and Sarah all got dressed up and had a bunch of fun playing and dancing together.
Lilly as a dancing princess
Thanks for all the love and support that everyone has given us.  We feel the love and support from you all often and it means a lot to us.
Sarah wants to dance too

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