Monday was Lilly's first day of school. She had a lot of fun and was excited for the whole ordeal. Jess had packed her a lunch. When Jess picked her up, her lunch was still in her bag. When Jess asked what happened, Lilly told her that she just went to lunch with her class and ate in the lunchroom. She had grilled cheese. We had to talk to her about how careful she needs to be so that she doesn't eat something with egg.
I also wanted to clarify Sarah's schedule a little since I had a few people asking. Sarah has an appointment every day for the rest of the week. On Tuesday, she meets with her doctors and she has a spinal tap. Here in Seattle Children's, they do the spinal tap right in the oncology clinic. Her doctor's appointment is at 10:30 and the appointment for the spinal tap is 1:00 pm. On Wednesday, Sarah has a long infusion appointment. She goes and gets 2 drugs through the IV and 4 hours of fluids. On Thursday, Friday, and Saturday, she has shorter infusion appointments. She is only getting one drug and they don't need to have her on the fluids as long. It should be an interesting week for the schedule. Luckily Lilly is in school and it makes it easy to find a sitter or to take Gus with Jess. Jess and I are still planning on both going for the appointments when Sarah sees the doctor, but are going to split who takes her to the infusion appointments.
Thanks for all the support and love that you have shown us.
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