We had Sarah stay home from church today. Even though we don't think her numbers are past the threshold, she has had a little bit of a cough and a runny nose. Because of the levels of her hematocrit, she has some labs that they are set to draw Monday morning. It is possible that she will have to get a blood transfusion as well. She had a good day today and even got her church clothes on later in the day. She loves to have a dress on.
Lilly has been asking to go to one of Sarah's appointments for the last few weeks. I took Lilly with me to Sarah's appointment. She had fun since it was just an infusion, and we didn't have to talk to doctors. The main reason Lilly wanted to go was that the clinic has a wall with a bunch of PEZ dispensers on it. Lilly loves the PEZ after she got her first one when we were in UT. Her favorite was a pink panther one, while Sarah's is the Princess Leia one. We grabbed some Slurpee's on the way home. Lilly thought it was a great outing.
We are done with Sarah's four a week appointments for a couple of weeks and we are done with Sarah's back pokes for 6 weeks or so. That means we don't have to starve her for any appointments any time soon. We are grateful for that. She hasn't really lost her appetite, but she has reduced the amount that she eats at dinner.
Thank you for all the support and love that we receive. It helps to lift our spirits.
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