I figured since all the papers list the activities that happen based of the days of the chemo rounds, it might be easier to put that in the title. So today was day 7 of Sarah's induction treatment. That means that we are heading back to the hospital tomorrow to get her next dose of chemo, well we hope. There is still a lot that is unknown. When Jess called and get the appointment at the clinic, they asked who came and talked to us while we were in the hospital. When we said that nobody did, they said that something must have slipped through the cracks and they were so sorry. That means that we will find out exactly what happens when get there in the morning. We have to be to the clinic at 8:30 in the morning. The plan is to give her the chemo meds, and then platelets in preparation for the surgery around 11:30ish. The surgery will be the spinal tap and the bone marrow biopsy. It should be a quick one.
Sarah's numbers were down a little today. Her ANC number was .2. We had hoped that they would go up but in talking with the doctor, I have a feeling that while she is on the steroid (DEX), her numbers will stay down. Luckily, we are half way through that. We would love to see her "de-accessed" but we don't think it will happen because the papers say that she gets the antibiotic until her numbers are above 500. Again, we will see what happens tomorrow.
Sarah had a good day today. She was more lively and we saw glimpses of herself. Lilly and Tonya went on a picnic for lunch and when Sarah heard, she adamantly wanted to go. I told her we could have a picnic in her room and that satisfied her. She has had a few mood swings, like before dinner, she didn't want me around at all. She kept telling me "Dad, you go upstairs." I never thought my 3yr would be telling me to go away like that.
Thanks again for the prayers and support. We feel it and are grateful.
Thanks for the update, I will continue to pray for your family.
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