Sarah's Cancer: Day 3

Sarah has had a good day today.  She has been active and happy most of the day.  She had her sister visit her with Shannon and Grandma Pheobe.  They took her down to the playroom and she had a lot of fun playing with the toys, even though she had the IV pole following her around.  Her demeanor is beginning to return to normal.  We are grateful for the quiet day.

After talking to the Oncologist, we have more information about how the treatment will happen.  We have a good idea of the next 30 days and what will happen.  It looks like Sarah will get the PEG-ASP on Saturday and we might be able to go home on Sunday depending on Sarah's counts.  Hopefully they will be good so that we can go home.  Then every Wednesday for August, we will be back up here at Primary Children's for Sarah's chemo therapy.  Next Wednesday (day 8) and the last Wednesday (day 29) she will have to go into surgery to get a bone marrow biopsy and a spinal tap.  She might need to get the biopsy on the Wednesday after next (day 15) depending on her numbers.  We need to be careful with her and make sure that she stays healthy.  If she gets a fever, she is going to have to be readmitted back into the hospital.

It looks like we probably won't be heading back home until after the first round of chemo.  It is possible that we can head home between day 15 and day 22, but that depends on how Sarah is doing.  We are blessed that Seattle also has a good program to help children with cancer.  We will have weekly or monthly visits to the hospital for the next 2.5 years.  We still need to ask about how Sarah's cancer will affect family vacations.  We have been tentatively planning a trip to Disneyland in October, but that has been put on hold for an unknown specified period of time.

Thank you to all for the love and support.